Superhero Challenge for a Cure

There is no treatment for KIF1A Associated Neurological Disorder. Yet. Join our mission to improve & save the lives of our superheroes. #WeCanCureKAND

A fundraising campaign for KIF1A.ORG

KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KAND is a neurodegenerative disorder that robs children of their ability to walk, talk and see, sometimes even eat and breathe. As our children grow, their condition worsens with this progressive--sometimes fatal--disorder, which is why our mission is so urgent. 

There is no treatment. Yet. 

KIF1A.ORG is a growing community of patients, families, researchers and supporters like YOU dedicated to bringing treatment to THIS generation of KAND patients. Treatment is within reach, but there are two obstacles in our way: time and money. 

We challenge YOU to accelerate our urgent mission by supporting one of our family-led fundraisers or creating one of your own. 

How does it work?

The Superhero Challenge for a Cure fundraiser gives KIF1A families and fans an opportunity to create fun "Challenges" in which their family, community and most importantly, their superheroes, can participate. Walk-a-Thons. Hiking Challenges. Walker Races. Superhero Costume Competitions. Pumpkin Carving Contests. Pie in the Face Challenges. Anything goes! 

Fundraiser organizers have until October 31, 2020 to tackle their challenge and reach their fundraising goal. 

Your donations will empower KIF1A families to realize our vision of bringing KAND treatment to this generation of superheroes before time runs out. Are you in?

Share this Campaign!

About the Organization

Who We Are: KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

Our Challenge: KAND is a neurodegenerative disorder caused by mutations in the KIF1A gene that rob children of their ability to walk, talk and see, and sometimes even eat or breathe. As our children grow, their condition worsens with this progressive—sometimes fatal—disorder, which is why our mission is so urgent.

There is no treatment. Yet.

Call to Action: KIF1A.ORG is building a growing community of patients, families, researchers, clinicians and supporters like YOU dedicated to bringing treatment to THIS generation of KAND patients. Treatment is within reach, but there are two obstacles in our way: time and money. You can empower KIF1A families to accelerate our urgent mission by supporting and sharing our family-led fundraiser. KIF1A families from around the world thank you for joining our mission!