288a010429625a172da1fbac3e950b1687015475

for Upstate New York 2020

A fundraising event for Lupus Alliance of Upstate New York

Event Information

12:00am Friday, May 08, 2020 to 12:00am Friday, July 31, 2020

Before social distancing, before the fight for PPE and testing, before COVID-19 knocked the world off its feet, those with lupus already understood the fear of contagion, the isolation of chronic illness, and the need for a more responsive health care system.

The coronavirus pandemic may have given the world a peek at what it’s like to live with lupus, but it’s also robbed our lupus family of our most cherished events – our lupus walks. These community-based events are eagerly anticipated each year. They are also an essential source of funding that allows LAUNY to provide programs for free whenever and wherever they are needed throughout Upstate New York.

No one knows what to expect from COVID-19. In that sense, it’s a lot like lupus. But we do know how to fight! Will you help?

Help raise funds and awareness in support of the Lupus community across the 33 counties served by the Lupus Alliance of Upstate New York. That’s right, all of us together because that’s what it will take.

Gather your friends and family. Share your photos and stories, because the fight isn’t just real, it’s personal… 

 

Jen is a Lupus Warrior in Northeast New York who lost her health and energy to lupus, but there were other losses she never anticipated.  She lost the career that she loved. She lost her financial security. She lost friends and the opportunities to go places and have fun as she once did. She lost her role as the family’s “go-to person”. She lost time in doctors’ offices waiting for a diagnosis that took nearly five years to come. All the while, her symptoms worsened, changed and then a fourth autoimmune condition was added to the diagnosis.

In spite of all of this, Jen talks with Lupus Warriors all over the world, comparing notes, finding and giving comfort, and advocating for herself and her lupus family. Jen is fighting back.

 

Click here to share your story. Click here to share your story and a photo. If you’d like to share the story of someone you wish to honor or remember, you can do that as well.


The more you raise, the more you earn! All prizes will be based on funds received by July 31, 2020 and will ship August 10, 2020 (provided no unplanned COVID-19 delays). 

RAISE

RECEIVE

$50 - $199

Walk tee

$200 - $299

Walk tee and canvas bag

$300 - $499

Walk tee, canvas bag, and $25 gift card

$500 - $749

Walk tee, canvas bag, and $50 gift card

$750 - $999

Walk tee, canvas bag and $75 gift card

$1,000

Walk tee, canvas bag and $100 gift card

 


For questions, comments or concerns, please contact: info@lupusupstateny.org or 800-300-4198, Ext. 1 (please leave a message and we will get back to you)

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About the Organization

Lupus Alliance of Upstate New York

The Lupus Alliance of Upstate New York (LAUNY) serves Central New York, Northeast New York, Rochester/Genesee Valley and Western New York. LAUNY provides programs, resources and support, free of charge, to those affected by lupus and related autoimmune diseases.